Ivey has managed to have herself one busy week. We came home from a great vacation, which I am working on pictures for everyone. On Sunday however, our elation of vacation was nixed like a finger caught in a slamming car door. Sunday morning Ivey had another seizure. We were grateful to be home and capable to go to our hospital here versus a foreign hospital at the beach. While at the hospital Ivey proceeded to have two more seizures. After monitoring her for several hours they sent her home with us.
Monday night Ivey had a fever. Tuesday morning the doc said she has a urinary tract infection. Thursday I took Ivey to Atlanta to her ocularist where she received new, and hopefully last set of conformers. Then we traveled on over to visit her neurologist to follow up about her seizures. So far we have upped her seizure medication and must watch her for weight gain, growth spurts and illness. All of which can affect her medication and allow seizures to break through.
Today Ivey went for an ultrasound on her bladder and kidneys. We want to make sure that she has a run-of-the-mill UTI and not an issue with her kidneys. Since she has so many mid-line issues, we must keep check on various organs. Hopefully we will know the results by Monday or Tuesday. Say a quick prayer for good news.
Other than that, Ivey has had a great week. She has been playful here at the end of the week. She is rolling non stop. She also got her big brothers off to their first week of school. This week has been a reminder that we must always stay on our toes and not let our guards down. Most importantly, it reminds us to enjoy the great times, like the beach, so that hectic times aren’t quite so crazy.
Oh, she is still on track for her first prosthesis. Six weeks from now she just might get her ‘new’ eyes.
Confessions from the mind of this sleep deprived mom navigating the world of complex medical needs, deafblindness, and special education. And y'all, it may not always be pretty, but it's real, and it's always for the love of Ivey.
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5 comments:
Wow, what a rude jump back into reality after your vacation! Sorry it was a tough week, but you seem to have taken it in stride.
I can't wait to see pictures of your trip.
And as always I am praying for Ivey and your family. I pray her results come back great!
Wow what a week! All that and you end on a positive note. That is really inspiring. In our thoughts and prayers.
Gwen- Praying for good test results. So exciting about her eyes!
I'm so glad that vacation was a break for you. Praying that the siezures stop and that all of the other things settle down as well.
Looking forward to the pics!
Have you chosen eye colour yet?
I will be praying as always..
can't wait to see what color Ivey's eyes will be...
I know they will be beautiful just as she is...
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